PHT 206: Understanding Disability and Best Practices for Communicating a Diagnosis

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Course Sponsored by: Lettercase National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute. This activity is not supported by educational grant(s) or other funds from any commercial supporter.

The overarching purpose is to give genetic counselors tools to assess the administration of genetic screening and testing in the context of the disability rights movement, to recognize what constitutes balanced information, and to promote culturally competent practice as well as client-centered, informed, non- coercive and value-based decision-making.

Learning Objectives

  1. Examine how the basic history of disability rights has impacted life outcomes for people with disabilities and the importance of recognizing current supports, services, and life outcomes when communicating about prenatal screening and testing for genetic conditions.
  2. Critically assess policies and practices that impact the provision of genetic information at the moment of diagnosis of a genetic condition.
  3. Define best practices for discussing prenatal screening and testing and delivering a prenatal or postnatal diagnosis of Down syndrome with accuracy, sensitivity, and cultural awareness.

This course was developed by

  • Dr. Harold Kleinert, EdD
  • Stephanie Meredith, MA
  • Supervisor: Angela Trepanier, MS, CGC

The course developers have no relevant conflicts of interest to disclose.

Course Support

Support is available by clicking Contact Us on any page within the course.